Director of Communications

RUNX1 Research Program | 2021–Present

RRP is the only global foundation dedicated to individuals with RUNX1 Familial Platelet Disorder (RUNX1-FPD), a rare inherited disorder that increases the risk of developing blood cancer.

 

About the Role

I built the communications department from the ground up, creating a scalable, patient-centered strategy that bridges scientific research and human storytelling. My work helps drive awareness, foster community, and support collaboration between researchers, clinicians, and families impacted by RUNX1-FPD.​

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Key Highlights

• Strategic Leadership: Designed and implemented an end-to-end communications framework—integrating editorial calendars, campaign strategy, and media outreach to strengthen brand voice and align content systems.

• Scientific Storytelling: Lead a monthly blog series that translates complex research into clear, actionable content for patients and families navigating inherited blood disorders.

• Digital Marketing & SEO:

  • Manage SEO strategy using Google Analytics, SEMrush, and Google Search Console

  • Built, launched, and maintain the organization’s Squarespace website, tripling annual web traffic through strategic content and SEO best practices

  • Execute Google Ads campaigns aligned with awareness and engagement goals

• Email & CRM Campaigns: Create and manage segmented email campaigns via Bloomerang—tailoring outreach for patients, clinicians, donors, and supporters across newsletters, appeals, and event invitations.

• Webinars & Educational Events: Lead end-to-end strategy and execution for webinars, including audience outreach, Zoom setup, live moderation, editing, and post-event communications.